| (As you begin this report, please note one thing. | | | | backs and necks, weakness, pain, insomnia, |
| Chronic Fatigue Syndrome (CFS) is not a health | | | | impaired memory, mood swings, and hair loss), |
| problem located solely within the boundaries of | | | | patients also suffered with total exhaustion, pain, |
| the United States. Different forms of the illness | | | | sleep disturbances, cognitive disorder, and |
| abound all over the world. Often it is called by | | | | extensive nervous system abnormalities. |
| other names, such as ME or Myalgic | | | | When members of the United States press |
| Encephalomyelitis, a term coined in Europe. | | | | industry began covering the epidemic in the news |
| Currently in the US, there is a grass roots effort | | | | and the Center for Disease Control (CDC) |
| to change the name of CFS to possibly ME-CFS, | | | | checked out what was going on in Nevada, the |
| short for Myalgic Encephalopathy-Chronic Fatigue | | | | term Chronic Fatigue Syndrome was coined and a |
| Syndrome.) | | | | new era began. Also, because many people |
| Period #2: In the twentieth century, there were | | | | suffered with a severely dysregulated immune |
| several outbreaks of something similar to Chronic | | | | system, the term CFIDS also became popular. |
| Fatigue Syndrome (CFS) throughout Europe, | | | | The term meant Chronic Fatigue Immune |
| Canada, Iceland, and Japan. (There it's called | | | | Dysfunction Syndrome. |
| autonomic imbalance.) | | | | The brave professionals from the 1980s who first |
| The severe Icelandic outbreak in 1948 and 1949 | | | | researched the illness and worked diligently to |
| came on the heels of a Polio epidemic. It was | | | | cure people in that outbreak received little |
| called "Iceland Disease." Sometimes such | | | | recognition from the medical community. Only the |
| outbreaks appeared to be restricted to only | | | | patients and other people scared of "catching it" |
| health care workers, but not that one. The | | | | appreciated the doctors. These medical |
| disease spread to the general populace in three | | | | entrepreneurs were joined by Dr. Anthony |
| rural towns, finally numbering up to 1,000 people. | | | | Komaroff of Boston, Massachusetts, Dr. Charles |
| Investigators did wonder if they had a form of | | | | Lapp of Charlotte, North Carolina, Dr. Jacob |
| polio, however, the illness pattern did not match | | | | Teitelbaum of Annapolis, Maryland, and of course, |
| the symptoms. In every case, the Icelanders | | | | the long time researcher, Dr. David Bell of |
| suffered with muscle pain and tenderness, | | | | Lyndonville, New York. (There were others |
| numbness, and twitching. No one developed | | | | working on CFS, but to mention each of them |
| paralysis. | | | | falls outside of the scope of this report.) |
| CFS began its current day notoriety and evolution | | | | Doctors and researchers suspected the Herpes |
| into being a "real" illness during a sudden outbreak | | | | virus family as being likely causal triggers: epstein |
| that occurred at Incline Village, Nevada in 1984. At | | | | barr, cytomegalovirus, coxsackie and human |
| first two local physicians, Dr. Daniel Peterson and | | | | herpes virus 6. Today we know that these |
| Dr. Paul Cheney (now of Asheville, North Carolina), | | | | illnesses show up routinely in people with CFS, but |
| did not know what they were dealing with. They | | | | they are not considered to cause it. |
| saw patients who exhibited symptoms of a | | | | For the purposes of learning about all three stages |
| severe and debilitating flu. By mid-1985, the | | | | of Chronic Fatigue Syndrome that document its |
| number of sick people totaled over 100. Along | | | | place in history, look up all three reports. The |
| with the illness characteristics previously | | | | more you know, the better equipped you are to |
| mentioned in Part 1 of this report (headache, easy | | | | deal with it. The other reports are titled, Report 1 |
| fatigability especially after exertion, loss of | | | | and Report 3. |
| appetite, intestinal problems, sweating, chills, stiff | | | | |