| Fibromyalgia is a syndrome (fibromyalgia | | | | sufferers also have sleep apnea, upper airway |
| syndrome, or FMS), or a cluster of problems. | | | | resistance syndrome, bruxism (teeth grinding |
| People that have fibromyalgia suffer with pain, | | | | during sleep), limb movement and jerking and |
| either all over or in particular places, have sleeping | | | | restless leg syndrome. All of these contribute to |
| problems, are overwhelmingly tired and may have | | | | the fatigue of fibromyalgia. |
| many other symptoms. Five to ten per cent of | | | | Again, this is how fibromyalgia sufferers describe |
| the population has fibromyalgia. Most of them are | | | | their fatigue. |
| women, but men and children do experience the | | | | “The fatigue is worse than the pain.” |
| symptoms, too. | | | | “Some days going to the bathroom feels like |
| Pain is the most distinguishing characteristic of | | | | a ten-mile hike.” |
| fibromyalgia. Medically, it’s described as | | | | “On bad days, all I can do is turn on the TV |
| generalized musculoskeletal aches, pain and | | | | for the kiddies and veg with them.” |
| stiffness. For the pain to be diagnosed as | | | | Pain and fatigue are the most disabling features of |
| fibromyalgia, it has to be present in all four body | | | | fibromyalgia, but there are other distressing |
| quadrants (arms and legs) for at least 3 months, | | | | symptoms, too. 40-70 per cent of fibromyalgia |
| and there has to be pain when pressure is applied | | | | sufferers experience irritable bowel syndrome or |
| to at least 11 of the 18 identified trigger points. | | | | other gastrointestinal problems. Constipation and |
| That’s the medical description. Here is how | | | | diarrhea, abdominal pain, excessive gassiness, |
| people with fibromyalgia describe it. | | | | nausea and gastroesophageal reflux are common. |
| “I can hardly move because of the pain | | | | Many fibromyalgia sufferers are distressed by |
| I’m in. I’m fighting to stay mobile.” | | | | associated mental and emotional problems that |
| “There is no way to describe the pain. You | | | | manifest themselves alongside the physical |
| live with it on a daily basis.” | | | | ailments. Anxiety and depression are common. |
| “What people don’t realize is that I am in | | | | It’s not known whether they are independent |
| pain all the time, every day.” | | | | factors, or if they are related to living in constant |
| “Sometimes you think, no big deal, it’s | | | | pain and fatigue and the social stigma of |
| just pain. It’s not life threatening. Sometimes | | | | fibromyalgia. People also complain of confusion, |
| you wish it was. At least there’d be an end in | | | | experiencing difficulty thinking clearly and a |
| sight.” | | | | reduction in ability to perform mental tasks. This |
| The pain waxes and wanes, varying in intensity. | | | | overall mental fogginess has been termed |
| People have good days and bad days. Some days | | | | “fibro fog.” |
| it’s not too bad; some days it’s pretty | | | | Other symptoms of fibromyalgia include |
| much disabling. The pain of fibromyalgia often gets | | | | headaches, restless leg syndrome, skin sensitivity |
| worse on cold or humid days, when you | | | | and rashes, dry eyes and mouth, Reynaud’s |
| haven’t slept well, when you are too inactive | | | | syndrome, and various neurological problems. |
| or too active, when you are stressed or when | | | | Fibromyalgia is an invisible disease. Sufferers look |
| your hormones change. | | | | fine on the surface. However, under their outward |
| The second most disabling characteristic of | | | | appearance they are often exhausted and in |
| fibromyalgia is fatigue. Recent findings suggest | | | | excruciating pain. Fibromyalgia is a chronic illness |
| that the fatigue is due to a stage four sleep | | | | that is, at its worst, incredibly disabling. The |
| disorder called alpha EEG anomaly. During deep | | | | symptoms have to be managed, and even then |
| stage four sleep, the brain has bursts of | | | | the pain and fatigue wax and wane. It’s a |
| awake-like activity, so there is not enough | | | | difficult disease to live with, but it’s not |
| undisturbed deep sleep for the body to get | | | | hopeless. Medical care and lifestyle management |
| sufficient rest. | | | | can make a big difference in how you feel if you |
| In addition to alpha EEG anomaly, many FMS | | | | are suffering from fibromyalgia. |